![]() ![]() About half of infants that survive experience severe neurological and cognitive issues, he said. And for those, it looks like there’s about a 40 percent mortality,” Orbach said. However, Orbach said, the treatment often happens too late.ĭespite advancements in care, “50 to 60 percent of all babies with this condition will get very sick immediately. ![]() Typically, infants are treated after they’re born using a catheter to insert tiny coils to slow down blood flow. Darren Orbach, a radiologist at Boston Children’s Hospital and expert in treating VOGM, told CNN. “Tremendous brain injuries and immediate heart failure after birth are the two big challenges,” Dr. The malformation, known as VOGM, results in an overwhelming amount of blood stressing the vein and heart and can lead to a cascade of health problems. The condition occurs when the blood vessel that carries blood from the brain to the heart, also known as the vein of Galen, doesn’t develop correctly. A sound you can't hear but may one day change your life ![]()
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